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翻訳と辞書　辞書検索 [ 開発暫定版 ] スポンサード リンク Tyler's Hope for a Dystonia Cure ： ウィキペディア英語版 Tyler's Hope for a Dystonia Cure Tyler's Hope for a Dystonia Cure ("Tyler's Hope") is a non-profit foundation based in Gainesville, Florida that raises money and awareness for Dystonia, a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal postures.〔Dystonia fact sheet: National Institute of Neurological Disorders and Stroke ()〕 Tyler’s Hope was established in 2005 by Rick and Michelle Staab in response to their son, Tyler’s, diagnosis with DYT1 Dystonia.〔(Tyler’s Hope for a Dystonia Cure website, “Tyler’s Story” section )〕 ==About Tyler's Hope== Tyler’s Hope is a member of the Dystonia Coalition, a collaboration of scientists, institutions, and patient organizations formed to advance the pace of clinical research for the dystonias.〔(Dystonia Coalition website )〕 Tyler’s Hope created the International Dystonia Patient Registry, a voluntary, a patient-reported, international, multi-center, disease or condition-listing registry for patients and their families who carry the DYT1 Dystonia gene.〔(Dystonia International Patient Registry website )〕 The organization also distributes grants, such as the Edward V. Staab Memorial Grant or the Cure Dystonia Initiative Grant, to promising Dystonia researchers. Tyler’s Hope has funded the writing and publication of a book on integrated management of Dystonia patients, The Dystonia Patient, written by the dystonia team at the University of Florida Movement Disorders Center. Tyler’s Hope hosts an annual think tank summit with the McKnight Brain Institute in Gainesville, Florida.〔(Tyler’s Hope for a Dystonia Cure website, “Research Funded” section )〕 The main project of Tyler’s Hope for a Dystonia Cure is the Tyler’s Hope Center for Comprehensive Dystonia Care, a research and treatment center dedicated to Dystonia and located in the University of Florida Movement Disorders Center.〔(The University of Florida Movement Disorders Center website )〕 抄文引用元・出典: フリー百科事典『 ウィキペディア（Wikipedia）』 ■ウィキペディアで「Tyler's Hope for a Dystonia Cure」の詳細全文を読む スポンサード リンク 翻訳と辞書 : 翻訳のためのインターネットリソース Copyright(C) kotoba.ne.jp 1997-2016. All Rights Reserved.